Dementia and home care: how to start, what to expect and how it changes


Home care can help someone with dementia stay in familiar surroundings, but how it starts matters. Introduce help gradually, involve the person in decisions, do things with them rather than for them, and remember that the Mental Capacity Act assumes a person can make their own decisions unless it is shown otherwise.

For England. Last checked 13 November 2026. Next check by 13 February 2027. General information, not financial, legal or medical advice.


In short

  • Alzheimer’s Society advice: do things with the person, not for them; focus on what they can still do; allow time; and break tasks into steps.
  • A change in behaviour can signal an unmet need, such as thirst, hunger, pain, confusion, frustration or boredom (Alzheimer’s Society).
  • Having dementia does not automatically mean someone lacks capacity to make a particular decision, and an unwise decision does not on its own mean they lack capacity (NHS).
  • As dementia progresses, the person will need more help with washing, dressing, eating and toileting, so the plan should be able to change (Alzheimer’s Society).
  • Family carers can ask the council for a free carer’s assessment (NHS).

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Start with the person, not the task

Before any carer visits, it helps to write down who Dad or Mum is: their routines, what they love, what upsets them, how they like their tea, the names that matter. Alzheimer’s Society recommends the “This is me” leaflet, which records details about a person’s identity, for people receiving professional care.

Introduce help in small steps. Starting with a couple of visits a week, and building up only if you want to, gives the person time to get to know a new face. With Cott’s Care you can do exactly that, and we ask for just 48 hours’ notice if you ever need to stop.

Communication that helps

Alzheimer’s Society suggests:

  • speak more slowly and use simple words if speech is hard to follow
  • keep eye contact, avoid sudden movements and do not stand over the person
  • include the person in conversation rather than speaking for them
  • reduce background noise
  • avoid asking many questions: offer options or yes or no choices

It adds that communication difficulties can also come from pain, other health conditions, side effects of medication or sensory impairment, so a health check is worth considering if things change.

Do with, not for

Alzheimer’s Society advises doing things with the person rather than for them, focusing on what they can still do, allowing extra time, breaking tasks into steps, and focusing on the process rather than on completing the task. Carers can help keep existing relationships going and encourage social contact, for example through dementia cafés. A carer also has to balance independence against safety.

Behaviour that changes

Alzheimer’s Society says out-of-character behaviour can be a sign of an unmet need: the person may be thirsty, hungry, in pain, confused, frustrated or bored. A calm carer who knows the person well is better placed to notice, and to tell you.

We say “knows the person well” carefully. We do not promise the same carer every time. Our data from 5 June to 2 September 2026 showed that a regular team of about four carers delivered more than 8 in 10 of a client’s visits.

Capacity, consent and choice

The NHS summarises the Mental Capacity Act: assume a person has the capacity to make a decision unless it is shown otherwise, help people to make their own decisions wherever possible, do not treat someone as lacking capacity just because they make an unwise decision, and make any decision for a person who lacks capacity in their best interests, using the least restrictive option. Alzheimer’s Society adds that previously expressed wishes should be reflected.

Capacity is specific to each decision and can change over time. A family member’s view is not a formal assessment. Our guides on what to do when Mum or Dad says no to help and lasting power of attorney go further.

What home care can help with, and how it changes

The NHS describes home care as help with things such as getting up, washing and dressing, preparing meals, reminders to take medicines and getting out and about. It can be a few hours a week, several hours a day or overnight, and live-in care is available.

As dementia progresses, Alzheimer’s Society says the person will need more help with washing, dressing, eating and toileting. A plan should be able to grow with that. Almost all our visits are 30 minutes or longer, and we plan the length with you. Our carers are competency-assessed and signed off by trained assessors, and we provide home visits, live-in, end-of-life and complex care at home.

Looking after yourself

Family carers can ask the council for a free carer’s assessment, and the NHS says anyone over 18 who looks after someone regularly can ask for one. Our guide to Carer’s Allowance and carer’s assessments explains how. Call us on 01242 371048, day or night, to talk about a break: a free assessment is usually within 48 hours.

What this guide does not cover

It is not clinical advice and does not explain how to get a diagnosis. It does not cover care home decisions. The sources we read do not explain how deprivation of liberty rules apply to people at home. We did not find official Gloucestershire dementia service pages we could verify, so ask the GP, or Alzheimer’s Society for local support.

Sources we used

How we wrote this guide

This guide is general information for England, written by the Cott’s Care team. Cott’s Care Limited (registered with the CQC as Cott’s Care Solutions) is a family-run home care provider in Cheltenham with over 20 years of experience.

Every public fact comes from the official pages listed above, which we read on 13 November 2026. We do not quote benefit amounts, fees or thresholds, because they change: the sources give the current figures. We will check this guide again by 13 February 2027, and sooner if the rules change.

It is not financial, legal or medical advice, and we cannot say whether any person will qualify for a benefit or service. If you spot something that looks out of date, please tell us on 01242 371048.

Cite this guide: Cott’s Care Limited (13 November 2026). Dementia and home care: how to start, what to expect and how it changes. https://cottscareltd.co.uk/guides/dementia-and-home-care-getting-started/

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Dementia and home care: your questions

Introduce it gradually, with a few visits at first, write down his routines and preferences, involve him in choices, and let him stay in charge of how things are done. We suggest starting with a couple of visits a week and building up only if you want to.

Not automatically. The NHS says having a condition such as dementia does not necessarily mean someone lacks capacity to make a specific decision. Capacity depends on the decision and can change over time.

If he can make this decision, it is his choice. Ask what worries him, offer something small, and involve his GP if you are concerned about his capacity or safety.

Things such as washing and dressing, meals, medication reminders and company, from a few visits a week to several a day, overnight or live-in. The plan should be able to change as needs change.

We do not promise the same carer every time. From 5 June to 2 September 2026, a regular team of about four carers delivered more than 8 in 10 of a client’s visits.

Yes. You can ask the council for a free carer’s assessment, and Alzheimer’s Society covers looking after yourself and respite care.